Autism Has Always Been With Us
by
BERN
06/30/2007, 1:41 AM #
We called it mental retardation and childhood schizophrenia. I saw thousands of autistic children and adults in our psychiatric hospitals and our developmental centers in the 1960s and 1970s. Did you know that Pilgrim State Psychiatric Hospital on Long Island was at one time the largest hospital in the world? We used to shut away people who did not fit in with societal norms. Some of those people were hopelessly psychotic, some were autistic, some had postpartum depression and some were actually committed by their families because of menopausal changes. Some had undiagnosed thyroid problems, some had Huntington's disease. Our state hospitals were overflowing.
What I am saying is that to lay people, it seems as if there is an epidemic of autism. There isn't. Autistic people have always been with us. But you didn't see them in the 1920s, 1930s, 1940s, 1950s, 1960s and 1970s because the norm at that time was to institutionalize children who required so much attention from their families. Parents were convinced by physicians, by clergy (and by themselves) that their other children would suffer because parents would be unable to give them the attention they needed due to the attention needed to watch an autistic child who may engage in headbanging behavior, or make the same noise all the time. There was no home care. There were no educational opportunities for autistic people, no mainstreaming in public schools, no treatment at all. I saw middle-aged people who had been institutionalized for their entire lives.
In the 1980s, autism was named and made a separate diagnosis from retardation and schizophrenia. Since then, more and more parents opted to keep their children at home. State psychiatric hospitals and developmental centers have closed down. Nowadays, you see the people who would have been shut away 20-70 years ago and you think there is an epidemic. There isn't. They have always been with us; they were behind brick walls in state institutions, virtually imprisoned for life because of a lack of understanding and a lack of treatment.
It isn't vaccines. It isn't thimerosal (which has been banned in Denmark since the 1990s, yet the number of children diagnosed with autism has continued to rise). It's because our state hospitals and developmental centers have been closed down and autistic people are now visible in our families and in our communities. They can't be shut away anymore. Now they are here with us in the larger world and they are receiving treatment, education and the love that they did not get before.